Posts by admin

UN Workshop

Posted by on Aug 8, 2017 in News | 0 comments

UN meeting to tackle witchcraft-related attacks on people with albinism In numerous countries around the world, witchcraft-related beliefs and practices have resulted in serious violations of human rights including, beatings, banishment, cutting of body parts, amputation of limbs, torture and murder. Women, children, the elderly, and persons with disabilities, particularly persons with albinism, are particularly vulnerable. Despite the seriousness of these human rights abuses, there is often no robust state led response. A ground-breaking workshop at the UN Headquarters in Geneva on 21-22...

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International Albinism Awareness day 2017

Posted by on Jul 21, 2017 in Blogs | 0 comments

International Albinism Awareness day 2017 – Tanzania and the UK The 13th of June is the date when people with albinism all over the world ask for attention to the situation of people with albinism. This year’s theme of International Albinism Awareness Day was ‘Advancing with renewed hope’. The message gives new hope for persons with albinism to take a step forward, a step forward to conquer their fear, a step forward to mainstreaming, a step forward to a brighter future with an educated generation of the marginalized group. Some great events have been organised. Among these were an...

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24 January 2017: How to break the myth of albinism?

Posted by on Jan 24, 2017 in Blogs, Research Blog: Breaking the Myth of Albinism | 0 comments

  How to break the myth of albinism? The first post in a new series by Tjitske de Groot, tjitske.de.groot@vub.ac.be 1 in 1400 people in Tanzania lives with albinism. People living with albinism are often socially excluded and fiercely discriminated in Tanzania, which is a violation of human rights. To improve the wellbeing of these people, interventions to reduce discrimination, or so called stigma, should be implemented. However, little research has been done on the topic of stigma reduction interventions in general. Even less research has been done in the specific case of albinism or...

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Conference July 2015

Posted by on Mar 24, 2016 in News | 0 comments

Conference July 2015

The First International Workshop on Oculocutaneous Albinism in Sub-Saharan Africa was held in Douala, Cameroon on July 24-25, 2015. Read more about the Colloque international sur l’albinisme oculocutané en Afrique subsaharienne.

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Learning about albinism as a project intern

Posted by on Feb 12, 2015 in Blogs, Intern's Blog | 0 comments

Learning about albinism as a project intern

When Lancaster University (which I had left just a few months ago at the end of my undergraduate degree), offered me the chance to work as an intern on this project, I gratefully accepted. In the week that followed, family and friends asked me what I knew about albinism in Africa, and I cheerfully replied “Nothing, really.” I had only ever met one person with albinism, and knew almost nothing about the condition beyond its visible signs. I certainly hadn’t ever thought about it in any African contexts. It seemed obvious that people in Africa with albinism might stand out in their...

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