Breaking the Myth of Albinism
Tjitske De Groot - Vrije Universiteit Brussel, Belgium International conference on albinism: Different shades of white 6 til 8 September 2018 an international conference took place at the Johannes Gutenberg University in Mainz, Germany, titled ‘Different shades of white: interdisciplinary perspectives on the albinotic body’. The conference focused on the variety of ways in which people perceive people with albinism from a multitude of backgrounds and fields of study. People joining the conference presented papers on albinism from historical, social, aesthetic and political...
Read MoreUN Workshop
UN meeting to tackle witchcraft-related attacks on people with albinism In numerous countries around the world, witchcraft-related beliefs and practices have resulted in serious violations of human rights including, beatings, banishment, cutting of body parts, amputation of limbs, torture and murder. Women, children, the elderly, and persons with disabilities, particularly persons with albinism, are particularly vulnerable. Despite the seriousness of these human rights abuses, there is often no robust state led response. A ground-breaking workshop at the UN Headquarters in Geneva on 21-22...
Read MoreInternational Albinism Awareness day 2017
International Albinism Awareness day 2017 – Tanzania and the UK The 13th of June is the date when people with albinism all over the world ask for attention to the situation of people with albinism. This year’s theme of International Albinism Awareness Day was ‘Advancing with renewed hope’. The message gives new hope for persons with albinism to take a step forward, a step forward to conquer their fear, a step forward to mainstreaming, a step forward to a brighter future with an educated generation of the marginalized group. Some great events have been organised. Among these were an...
Read More24 January 2017: How to break the myth of albinism?
How to break the myth of albinism? The first post in a new series by Tjitske de Groot, tjitske.de.groot@vub.ac.be 1 in 1400 people in Tanzania lives with albinism. People living with albinism are often socially excluded and fiercely discriminated in Tanzania, which is a violation of human rights. To improve the wellbeing of these people, interventions to reduce discrimination, or so called stigma, should be implemented. However, little research has been done on the topic of stigma reduction interventions in general. Even less research has been done in the specific case of albinism or...
Read MoreConference July 2015
The First International Workshop on Oculocutaneous Albinism in Sub-Saharan Africa was held in Douala, Cameroon on July 24-25, 2015. Read more about the Colloque international sur l’albinisme oculocutané en Afrique subsaharienne.
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