International Albinism Awareness day 2017
International Albinism Awareness day 2017 – Tanzania and the UK The 13th of June is the date when people with albinism all over the world ask for attention to the situation of people with albinism. This year’s theme of International Albinism Awareness Day was ‘Advancing with renewed hope’. The message gives new hope for persons with albinism to take a step forward, a step forward to conquer their fear, a step forward to mainstreaming, a step forward to a brighter future with an educated generation of the marginalized group. Some great events have been organised. Among these were an...
Read More24 January 2017: How to break the myth of albinism?
How to break the myth of albinism? The first post in a new series by Tjitske de Groot, tjitske.de.groot@vub.ac.be 1 in 1400 people in Tanzania lives with albinism. People living with albinism are often socially excluded and fiercely discriminated in Tanzania, which is a violation of human rights. To improve the wellbeing of these people, interventions to reduce discrimination, or so called stigma, should be implemented. However, little research has been done on the topic of stigma reduction interventions in general. Even less research has been done in the specific case of albinism or...
Read MoreLearning about albinism as a project intern
When Lancaster University (which I had left just a few months ago at the end of my undergraduate degree), offered me the chance to work as an intern on this project, I gratefully accepted. In the week that followed, family and friends asked me what I knew about albinism in Africa, and I cheerfully replied “Nothing, really.” I had only ever met one person with albinism, and knew almost nothing about the condition beyond its visible signs. I certainly hadn’t ever thought about it in any African contexts. It seemed obvious that people in Africa with albinism might stand out in their...
Read MorePost from Geita
Geita, Tanzania 30 May 2014 Hello everyone. I am Tjitske de Groot, 22 years old, from the Netherlands. Together with a friend I am working as an intern at Nelico in Geita, Tanzania. We are working for the albinism department of this Tanzanian NGO. We are collaborating with the Tanzania Albino Society (TAS). This is an organization that advocates the rights of people with albinism in Tanzania. TAS Geita is the local branch of this national organization. The objectives of the organizations are: To empower people with albinism To raise awareness about albinism in the larger community To...
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