News

What’s the latest from the team behind the website? Follow our activities by clicking on the links below.

 

The Challenge of Bullying in Schools

Simon Ngalomba, Lecturer in Educational Management at the University of Dar es Salaam has published an article on ‘Taunts and bullying drive children with albinism from Tanzanian schools’ on The Conversation: http://theconversation.com/taunts-and-bullying-drive-children-with-albinism-from-tanzanian-schools-63559

 

Albinism and Witchcraft meeting planned at the UN

Albinism_meetingThe UN Independent Expert on Albinism, Ikponwosa Ero visited Lancaster University from 2 - 4 November 2016 to participate in a meeting organised by Dr Charlotte Baker, Director of the Albinism in Africa project, and supported by the Lancaster University Impact Fund.

Delegates included Gary Foxcroft (Director, Witchcraft and Human Rights Information Network), Jon Beale (Standing Voice), Patricia Lund (Coventry University), Rick Jones and Emilie Secker (Safe Child Africa), Charlotte Baker (Lancaster University) and Samantha Spence (Lancaster University).

The focus of the meeting was to plan an Expert Meeting on Albinism and Witchcraft at the United Nations headquarters in 2017. The Expert Meeting will put forward a series of recommendations to the UN Human Rights Council in a bid to influence policy on this issue in the countries affected.

 

Regional Forum for Action on Albinism in Africa

The first-ever regional forum for Action on Albinism in Africa was held in Dar es Salaam, Tanzania from 17-19 June 2016. The event was hosted by the United Nations Independent Expert on albinism, Ikponwosa Ero with the aim of developing specific measures to tackle the attacks and discrimination faced by persons with albinism in several countries in the region.

 

cmsStanding Voice’s Vision Programme in Tanzania

In March 2016, Standing Voice coordinated a three-day event delivering care and education to 302 patients with albinism from across the Lake Zone of Tanzania. Established in early 2014, Standing Voice’s Vision Programme is a network of clinics delivering low-vision care across seven regions of Tanzania.

http://www.zetteler.co.uk/news/standing-voice-vision-for-the-future

 

On Albinism Awareness Day 2016, Ban Ki Moon urges all countries to break cycle of attacks and discrimination

MONUC-AlbinismUnited Nations Secretary-General Ban Ki-moon today called on all countries to end the discrimination that threatens the wellbeing, health and even the lives of people with albinism, and to provide programs that will enable them to play a full part in society. “I call on all countries and stakeholders to recognize that human rights apply to all people everywhere, including people with albinism,” Mr. Ban said in a message, marking the second International Albinism Awareness Day since the UN General Assembly adopted a resolution dedicating 13 June to this issue.

http://www.un.org/apps/news/story.asp?NewsID=54206#.V3I33mdTGUm

 

Bonface prizeBonface Massah wins Bari-Bari Prize for Albinism Advocacy

Bonface Massah of Malawi was announced as the winner of the first Bari-Bari Prize for outstanding albinism advocacy at the Pan African Albinism Conference in November 2015. The Bari Bari Prize was initiated by Under The Same Sun in honour of Ambassador Yusuf Mohamed Ismail Bari-Bari of Somalia to the UN office in Geneva, who led several albinism resolutions at the UN. Tragically, his life was taken in a terrorist attack on March 27, 2015. See article in The Nation.

 

Pan African Albinism Conference (PAAC) hosted by Under the Same Sun in Tanzania

The Pan African Albinism Conference was hosted by UTSS at the Julius Nyerere International Convention Centre in Dar es Salaam, Tanzania from November 19- 22, 2015. Approximately 200 people attended, with representation from the albinism communities of 29 African nations as well as 9 non-African nations.

The conference was sponsored by Under The Same Sun, the Organisation Internationale de la Francophonie (OIF), Standing Voice, UNICEF, the Open Society Initiative of East Africa, Holiday Inn, Precision Air, the embassies of France and the Netherlands and the Canadian High Commission.

A medical clinic was run on-site by Standing Voice, and all conference attendees with albinism received free skin and eye examinations. For more about the conference see Under the Same Sun.

 

International Albinism Awareness Day

The 13th of June was chosen as International Albinism Awareness Day, as it was on that day in 2013 that the UN adopted its first ever resolutionon albinism. The move was the result of advocacy by Under the Same Sun and cooperation with various UN bodies.

International Albinism Awareness Day aims to increase international attention and to raise awareness of the human rights situation of people with albinism to fight against discrimination and stigma.

The UN dedicated a website to persons with albinism http://albinism.ohchr.org and you can find the International Albinism Day website here: http://www.albinismday.com

 

Cameroon Conference 2015

A meeting on 2 July 2014, funded by Charlotte Baker’s Lancaster University Knowledge Exchange Fellowship, enabled the project team to start planning for a two day conference in Cameroon in 2015. The conference will bring together researchers, scientists, medical professionals, and those involved in education and advocacy, with leaders of associations that support people with albinism throughout Africa. Click here for a report on our 2015 conference.

 

Charlotte Baker’s blog and contribution to The Conversation

Charlotte Baker’s Lancaster University blog flags up the importance of collaboration between researchers and associations in challenging misconceptions about albinism:  http://www.lancaster.ac.uk/news/blogs/charlotte-baker/albinism-in-africa,  as does her contribution to The Conversationhttps://theconversation.com/grave-robbers-and-killing-sprees-living-with-albinism-in-east-africa-32300

 

News links provided by Under The Same Sun  http://www.underthesamesun.com/news:

 

Tanzanian Albinos Fear for Safety After Rally Canceled

Newsweek, 3 February 2015 (Thomson Reuters Foundation): Tanzanian police banned a demonstration on Monday to protest against attacks and murders of albinos, fuelling concerns that authorities are not committed to ending violence against albinos whose body parts are highly valued in witchcraft. Read more…

 

Attacks on Albinos: UN Passes Historic Resolution

The Patriotic Vanguard, Sierra Leone News Portal, 20 June 2013: On June 13, 2013 the United Nations Human Rights Council in Geneva adopted by consensus a resolution sponsored by The African Group of Nations which recognizes and addresses the attacks and discrimination people with albinism face in many countries. Read more…

 

Africa and Albinism: Horrors give rise to awareness

The Africa Report, 9 October 2012: Different cultures around the world have many beliefs regarding people with albinism. Some African communities believe that albinos are a bad omen. Some African communities mistakenly think albinos are mentally retarded and discourage their parents from taking them to school. It is a waste of money, some argue. Read more…